Parkinsons doesnt just breaks bodies- It breaks family
Yesterday was World Parkinsons Day. I want to share my mother’s journey-a story of pain, resilience & how Parkinson’s changed everything for our small family. We are a family of three-my father, mother, and me.
We struggled financially throughout my childhood. But my parents never gave up. They made sure I got a good education, no matter the cost. When I finally got a job, I thought our hardships were over.
I could finally support them, build my career, and let them rest after years of sacrifice. But that peace didn’t last long. Parkinson’s entered our lives.
My mom is just 48. Diagnosed 36 months ago. No tremors-chronic pain, severe stiffness, her fingers curling backward, and involuntary movements from the medication. It’s not the Parkinson’s people typically imagine.
She’s a pure vegetarian, never smoked or drank—just lived a simple, quiet life. Now she’s in constant discomfort, with good days becoming rare. And watching that is unbearable.
I work in a big company and had all my hopes on corporate insurance. But then came the shock, Parkinson's treatment for employee parents isn't covered. That one clause shattered me.
Parkinson's mostly affects the elderly. If parents aren't covered, what's even the point of including the disease in the policy? It's disheartening to know the system fails where it's needed most.
Doctors suggested Deep Brain Stimulation (DBS) as the best shot for improvement. But the cost runs into lakhs - completely unaffordable for a middle-class family like ours. Even my PF withdrawal won't cover 5% of it.
I'm doing everything I can-but the emotional and financial toll is huge. It's affecting my career, my mental health, and my ability to focus. I carry the weight of feeling helpless every single day.
Parkinson's isn't just a neurological disorder. It's pain. It's watching your mother suffer while being unable to help. It's fighting a system that turns away when you need it the most.
We're not asking for sympathy. We're asking for awareness, for policy change, and for dignity-for patients and caregivers.
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Wishing speedy recovery for your mom. Dude you have to become strong, everyone has to go through this phase when our parents get old or is having any medical issue. Take things little calm, everything will get fine.
I am also going through similar situation. My father is 68 years old and has Parkinson. It has affected his movements, he can't move sometimes during day time, complete movement stops at night. He become restlessness when not able to move body. My mother was taking care of him but now she is also giving up as she is also old and her body doesn't allow it. Its very difficult to see parents in this way.
As I can clearly see your family has overcome a lot you have done a wonderful work throughout your life , you are already doing whatever you can but somethings are just out of your hand my prayers are with your mother just try to be happy for the sake of your family and try to pass this hard time, at the end that is all we can do sometimes.
Sending healing thoughts and good vibes your way. Wishing you strength, hang in there.